Wanted: Participants for City of Edmonton Discussion Group – August 5, 2015

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Public Transit Discussion Group

The City of Edmonton is holding a group discussion with public transit users who are on low-income.

Details of this discussion group is as follows:

Who:  City of Edmonton

What: Discussion group to provide input for a pilot project on low-income bus passes

  • Questions for the discussion group:
    • would people prefer a $35 monthly pass or bus ticket at a $1 per ticket?
    • Where would be the most convenient place to purchase the monthly pass or tickets?

Where:  DECSA

When:  August 5, 2015

Time: 2:00 p.m. to 2:45 p.m.

Why:  To have one’s say regarding the important issue of affordable transportation PLUS! Gift care for participants

Please call DECSA for more information

Registration for Jeff Noble and FASD1OH1 is Now Closed

registration closed

 Registration for Jeff Noble’s event scheduled for September 24, 2015 is now closed.  

For those who have registered and received confirmation of attendance, please send in your registration fees by September 01, 2015.  Please send/deliver the registration fee (cash/cheque) to: #2, 9137 Jasper Ave, Edmonton AB, T5H 3T2, Attention Lisa Rogozinsky (please make cheques payable to ‘Bissell Centre’).

Thank you all

Reminder – EFAN 2nd Annual General Meeting

This is to remind everyone that the Chairpersons of Edmonton and Area Fetal Alcohol Network Society invites you to it’s 2nd Annual General Meeting scheduled for September 01 2013.

AGM Invite 1

The Event includes entertainment, brief business items, a guest speaker from Robcan Group, and a delicious breakfast.  Cost per person is $10.  Please mail cheque to, #2, 9137 Jasper Avenue, Edmonton AB  T5H 3T2.  Kindly have cheques made out to Bissell Centre.

For more information and to RSVP please email Qadra.Abukar@cssalberta.ca

invoice

Click image to download invoice

On Love, Adoption and Raising 3 Kids With FASD: Parent Perspective

Originally posted on Fetal Alcohol Spectrum Disorder:

By Lisa Phu, KTOO – Juneau | July 29, 2015

Not many people wish to raise a child with a fetal alcohol spectrum disorder, or FASD. Diane Lohrey is no different. But when she and her husband adopted three children, all later diagnosed with an FASD, they accepted the hardships and the rewards.

When you walk into the Lohrey household, kids seem to materialize out of thin air.

“We have five of our own and one foster, so six kids right now,” says the mom, Diane Lohrey.

The Lohrey family. From left to right: Elena, Kylie, John, Kristyanna, Diane (holding a foster child) and Emilyanne. Elena, Kylie and Kristyanna have all been diagnosed with FASD. (Photo by Lisa Phu/KTOO)

Two are biological, three are adopted and the foster child is through the state Office of Children’s Services.

“And they just called us a few minutes ago to see if we would take an 8-year-old boy, but we have no room right now,” Lohrey says.

They’ve already converted their garage into a comfortable bedroom. At least a dozen foster children have…

View original 640 more words

September 09, 2015 International FASD Awareness Day

2015 FASD Awareness Day

September 9th of every year is Fetal Alcohol Spectrum Disorder (FASD) Awareness Day.  FASD is a permanent brain damage that occurs when a woman drinks alcohol when Pregnant.  On this day, we remind all women and men that there is no safe time, no safe amount and no safe kind of alcohol consumption in pregnancy. Come join us on this day to raise awareness of FASD and for a cup of coffee.

FASD Poster 2015

Teen Lobbies for Those with FASD

Who said persons with FASD can not learn, take harder classes, and advocate/lobby for those with similar condition?



Recent high school graduate Gary Riege is a science and math whiz. He’s also a Star Wars fanatic, avid computer science techie and Advanced Placement student. He’s soft spoken, but he has big ideas, especially when it comes to bringing awareness to fetal alcohol spectrum disorder (FASD) and the need for more educational opportunities.

Teen lobbies for FASD

“I found out when I was really, really young,” Riege, 18, said about his diagnosis. “I always knew I had that.”

Riege and several others with FASD took to the steps of the Minnesota State Capitol earlier this year and spoke with their local legislators to ask for education changes that allow students on the fetal alcohol spectrum the same opportunities as other students.

Adopted at age 2, Riege’s parents, Christine and Dave, fostered his desire to learn.

“From a very early age they had me watching Animal Planet and the Discovery Channel, which got me interested in how the world works from a scientific perspective,” he said. “When you find out how some of it actually works, you only want to know more.”

But when the couple’s budding scientist met resistance in the classroom, they began looking for alternatives.

At East Ridge High School in Woodbury, Riege said he wasn’t able to take certain Advanced Placement classes, he couldn’t use a computer for note taking and the school district wasn’t following through with the accommodations listed in his individual education plan.

“I needed special education but (the district) always fought us on almost everything we asked for,” he said. “They wouldn’t follow my (individual education plan), and other times they wouldn’t add things. And when they would modify it they would remove all of my supports.”

Frustrated with the inability to partake in courses he knew he would excel in, Riege enrolled in the Minnesota Virtual Academy. He soon began taking Advanced Placement classes, delved deeper into the mechanics of computer science and got a confidence boost from supportive teachers that he said helped “big time.”

“It was a much better situation,” he said. “They followed my (individual education plan), the format was different so a lot of my accommodations were automatic and I had the ability go to a teacher anytime.”

And the best part, he said: “They let me take harder classes.”

One such Advanced Placement test had him writing out Java computer programming language by hand. And he was able to take both micro and macroeconomics classes.

He shared his positive experience at Minnesota Virtual Academy with state Rep. Denny McNamara and Sen. Katie Sieben in February at the Capitol.

“We need them to support legislation to basically improve the special education programs, more specifically for those with fetal alcohol spectrum disorder,” he said. “I want others to be able to take more complex math and science classes if they want.

“Just because they are in special education doesn’t mean they are less,” he added. “Our current system treats us as less, and it really bothers me.”

Along with advocating for more opportunities for fellow students with the disorder, Riege is also spreading the word about just how preventable FASD is.

“There is recognition but not enough, in my mind,” he said. “There’s still going to be a problem but we need to realize that it’s preventable and we need to reduce the number of people that end up having it.”

And for those with FASD, he said it’s all about support, now and in the future.

“We need that support in place so they can be successful,” he said. “Without giving them a proper education they aren’t going to go anywhere. There can’t be the, ‘Oh, you’re in special education? You can’t do that,’ anymore.”

Found on: http://www.swcbulletin.com/news/politics/3797039-cottage-grove-teen-lobbies-those-fetal-alcohol-spectrum-disorder

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