“Moving forward, universal agreement on a diagnostic system for FASD would provide the opportunity to more accurately determine the true prevalence and incidence of FASD on a national and international scale, as well as the comparison of data sets from different diagnostic centres.”
I agree, hence the following-
With the development of epigenetics showing the contribution of pre conceptual and pre natal alcohol to physical and neurological developmental impairments, both in the immediate offspring and future generations, the following is proposed –
The present nomenclature FAS, FASD, ARND be replaced by the following
Diagnosis – Alcohol Related Developmental Disabilities. [ARDD]
Diagnostics
Alcohol origin
1- Paternal pre conceptual
2- Maternal pre conceptual
3- Maternal pre natal
Full Physical and neuropsychological testing , as in the Canadian Guidelines and the Washington 4- Digit Code.
The degree to which Neuroimaging, the Genetic/Epigenetic and DSM correlations add weight to the diagnosis to be determined.
Barry Stanley
May 17th, 2016
Updated 19th. Oct. 2016, 4th April, 2017.
Alcohol Related Developmental Disabilities.
1- There are now a number of fasd diagnostic guidelines that differ to some degree. This
proposal would include all of them and avoid confusion.
2- The proposed diagnostic term would embrace all the new developments of our understanding
of the effects of prenatal and pre conceptual alcohol.
Elimination of “fetal” would allow inclusion of the effects of alcohol consumption by the
adolescent, whose brains development is still continuing. It would also help to reduce the stigma
suffered by birth mothers.
3- The new diagnostic term would include those consequences of prenatal alcohol exposure
that are not included in the various diagnostic processes, especially sensory disabilities that
plague those who were exposed to prenatal alcohol. It would allow for the inclusion of
epigenetics and functional imaging, and no doubt other diagnostic tools yet to be discovered.
3- “Disabilities” is the term increasingly being used, by governments, agencies and individuals,
to describe the developmental consequences of prenatal alcohol exposure.
4- The Ontario Provincial Government and the Canadian Federal Government are increasingly
referring to “developmental disabilities” without reference to the role of alcohol. Adoption of this
proposal will ensure that the role of alcohol remains in focus, in spite of any governmental
efforts to the contrary.
Summary –
Alcohol Related Developmental Disabilities is inclusive.
FASD[S] is exclusive.
“Moving forward, universal agreement on a diagnostic system for FASD would provide the opportunity to more accurately determine the true prevalence and incidence of FASD on a national and international scale, as well as the comparison of data sets from different diagnostic centres.”
I agree, hence the following-
With the development of epigenetics showing the contribution of pre conceptual and pre natal alcohol to physical and neurological developmental impairments, both in the immediate offspring and future generations, the following is proposed –
The present nomenclature FAS, FASD, ARND be replaced by the following
Diagnosis – Alcohol Related Developmental Disabilities. [ARDD]
Diagnostics
Alcohol origin
1- Paternal pre conceptual
2- Maternal pre conceptual
3- Maternal pre natal
Full Physical and neuropsychological testing , as in the Canadian Guidelines and the Washington 4- Digit Code.
Neuroimaging
Genetic/Epigenetic correlations
DSM correlations.
The degree to which Neuroimaging, the Genetic/Epigenetic and DSM correlations add weight to the diagnosis to be determined.
Barry Stanley
May 17th, 2016
Updated 19th. Oct. 2016, 4th April, 2017.
Alcohol Related Developmental Disabilities.
1- There are now a number of fasd diagnostic guidelines that differ to some degree. This
proposal would include all of them and avoid confusion.
2- The proposed diagnostic term would embrace all the new developments of our understanding
of the effects of prenatal and pre conceptual alcohol.
Elimination of “fetal” would allow inclusion of the effects of alcohol consumption by the
adolescent, whose brains development is still continuing. It would also help to reduce the stigma
suffered by birth mothers.
3- The new diagnostic term would include those consequences of prenatal alcohol exposure
that are not included in the various diagnostic processes, especially sensory disabilities that
plague those who were exposed to prenatal alcohol. It would allow for the inclusion of
epigenetics and functional imaging, and no doubt other diagnostic tools yet to be discovered.
3- “Disabilities” is the term increasingly being used, by governments, agencies and individuals,
to describe the developmental consequences of prenatal alcohol exposure.
4- The Ontario Provincial Government and the Canadian Federal Government are increasingly
referring to “developmental disabilities” without reference to the role of alcohol. Adoption of this
proposal will ensure that the role of alcohol remains in focus, in spite of any governmental
efforts to the contrary.
Summary –
Alcohol Related Developmental Disabilities is inclusive.
FASD[S] is exclusive.
Barry Stanley. April 4th. 2017