Category Archives: FASD Awareness

FASD: Prevention awareness, support and understanding. -4TH FASD VIDEO SERIES (SECOND ROUND)

Myles Himmelreich is an FASD advocate and consultant, and motivational speaker.  In this video he shares information about FASD that is key to helping society make shifts in understanding. When we share information about FASD it leads to better support for mothers, individuals, families, and communities.

Thanks Saskatchewan Prevention Institute for making this video.

Alcohol and Pregnancy Survey

Service providers are ideally suited to screen pregnant women for alcohol use during pregnancy, as they are the point of contact with the healthcare system for these women.

It is imperative that they have appropriate training and skills to feel comfortable and competent working with pregnant women in a culturally safe and sensitive manner. As well, they must have the knowledge needed to assist and connect individuals and families with existing resources and services.

Survey(1)Image Source: ABAM.ca

 

The Society of Obstetricians and Gynecologists of Canada is leading a large National study and wants to work with

service providers in social services such as:

  • Education
  • Justice
  • Public health
  • Nursing
  • Midwifery
  • Substance abuse
  • Mental health
  • Child welfare
  • Women’s shelters
  • Homelessness workers
  • Adult literacy, etc)

to determine the knowledge, attitudes and behaviors of service providers with respect to alcohol use during pregnancy. The results of this survey will be used to inform the direction and content for training and education material for service providers related to screening and counselling for alcohol use during pregnancy.

The results will be anonymous and we need to have as many respondents as possible to make the data meaningful.  Participants will be entered into a draw for an iPad.

Please share widely with your contacts

Recruitment Email and Consent Form

Recruitment Email and Consent Form_FR

https://www.research.net/r/providersaboutalcoholandpregnancy

 

Thank you for your collaboration. Please do not hesitate to contact us if you need additional information.

Teenager reveals horror of living with FASD

Jade, 17, appeared on ITV’s This Morning alongside her adoptive mother Alison, following new findings that drinking alcohol during pregnancy is worse than taking Class A drugs. Jade says her conditions (FASD) is like having dementia. Dr. Dr Mary Mather warns of extreme affects after just one unit of alcohol

Here is the article retrieved from: http://www.dailymail.co.uk/femail/article-2966785/Teenager-reveals-horror-living-foetal-alcohol-syndrome.html

‘It’s like having dementia’: Teenager reveals horror of living with foetal alcohol syndrome as experts warn drinkin

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g when pregnant is worse than taking heroin or cocaine

A teenager has spoken about living with foetal alcohol syndrome and likened it to having dementia.

Jade, 17, appeared on ITV’s This Morning alongside her adoptive mother Alison, following new findings that drinking alcohol during pregnancy is worse than taking Class A drugs.

Speaking about the effects it has on her, she said: ‘It affects my ability to do normal everyday things – I present well and write well, but I can’t remember to lock the door or pick up the keys.’

After reading a leaflet on senile dementia in her doctor's surgery Jade said she recognised the symptoms and went home to tell her mother she had the diseaseJade, 17, appeared on ITV’s This Morning to talk about suffering from Foetal Alcohol Syndrome, which she likened to dementia

After reading a leaflet on senile dementia in her doctor’s surgery, Jade, who did not want to reveal her surname or where she is from, rec

ognised the symptoms and went home to tell her mother that she had dementia.

She said: ‘Mum said, “No you don’t”. But it feels a bit like having dementia.

‘The problem is remembering common sense things.’

Jade added: ‘The most frustrating thing is that I look bright to professionals but they don’t see there’s a problem.’

Talking about the latest findings, FAS expert Dr Mary Mather (far left) appeared on the programme alongside FAS sufferer Jade (centre) and her adoptive mother Alison (right)

Although the public is becoming increasingly aware of the syndrome nowadays, up until a few years ago it was rarely discussed,meaning Jade had no idea she had the syndrome until she was seven years old.

She said: ‘Where I lived when I was younger it was difficult. There were no rules and boundaries – so it didn’t help the diagnosis.’

After reading a leaflet on senile dementia in her doctor’s surgery Jade said she recognised the symptoms and went home to tell her mother she had the disease

Click here for the rest of the article

Disclaimer: The views and opinions in this article are those of the authors and do not necessarily represent the views of Edmonton and Area Fetal Alcohol Spectrum Disorder Network.

Ricky Nelson on living with FASD -3RD FASD VIDEO SERIES (Second Round)

Ricky Nelson’s mother heavily drank alcohol while she was pregnant with him.  While he doesn’t look like someone who has a disability as many others with FASD, he cant keep a job and struggles with everyday tasks. He needs constant supervision or he ends up making bad choices.

Here is the video as retrieved from: https://www.youtube.com/watch?v=2mC3mX7EwCI&index=8&list=PLiFZcDuldDA7k1pnjI1SHzq5p6_Ka-PwJ

Disclaimer: The views and opinions in this video are those of the producers and do not necessarily represent the views of Edmonton and Area Fetal Alcohol Spectrum Disorder Network.

Enjoying the Smaller Things -FASD Success Stories- 2nd Story (Second Round)

Here is the story of Roni and her beautiful family.  When Roni and husband’s last born moved out they decided to foster their great niece and nephews who have FASD.  The journey hasnt been easy but they are here sharing their success!

Here is the article as retrieved from: http://fasdforever.com/feedback/success-stories/page/10/

This is myself and my amazing husband of twenty eight years.969978_531920986845470_1775463338_n

We live in Colorado USA. Left to right is Carlton-5 now 6, Johnathon-2 now 3, Josh-1 now 2, Tiffany-4 now 5.. In 2012 we became empty nesters with our youngest son moving out to start his life in the Navy and now living in Japan. Then we started a journey of foster parents to our Great Niece and Nephews as an ICPC transfer from VA to Co. We were recently given custody and we are looking forward to adoption some day. During our fourteen month journey we are discovering that the children came with two IEP’s and two IFSP’s, asthma and vision issues. Now, we have discovered that all four have FASD a few have PTSD, ADHD, LD and Mood issues. Two of the children have come from one to two hour long melt downs every other day to one time a week or every other week and thirty minutes maybe. My six year old gave me a hug and said he was glad that he gets to live with us and that he is glad I’m his Mom!!! My five year old has been working on shopping skills, such has not tearing up the store, taking everything off the shelf’s to play with and not licking shopping carts, today she chose one out of her three coping strategies on her OWN to put her hands in her pockets when she feels that she can’t stop getting in to everything she sees!!

These are children that have talked about wanting to die since the age of three and would try to run in to a street full of cars and now walk with me and do not run off!!! Thank you Jeff and everyone this website helped me to understand it’s not my fault, that I can’t fix everything, but I am trying my best to manage, to look back and see how far we have come and value that. I still catch myself stressing and worrying about their futures, but not as much. I am grateful for the small things like being able to go shopping for food and my daughter can make it through the store and feel success and my son not speaking words of hate but learning to love.

Thank you and God bless all of you!

Roni

FASD & Adoption: Jennifer Rice & son Chris Goudy – FASD & Education -2ND FASD VIDEO SERIES (Second Round)

Jennifer Rice, an adoptive parent of a child with FASD talks about what  school system needs when it comes to students with FASD.

Here is the video as retrieved from: https://www.youtube.com/watch?v=ZmftKf899AM&list=PLiFZcDuldDA5-ZJEfqn2N0aJEIBSHSNGB&index=1

Disclaimer: The views and opinions in this video are those of the producers and do not necessarily represent the views of Edmonton and Area Fetal Alcohol Spectrum Disorder Network.

Winning the Battle With FASD: A Family Success Story – FASD Success Story (Second Round)

The Soetaert Family will provide an in depth conversation of how a family of five affected by FASD cope with the day to day challenges as well as successes.

Published by YourAlberta

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